Susan Coleman & LeAnne Barta founded Indiana Lyme Connect, ILC , after experiencing the problems of delayed diagnosis and complexities of treatment firsthand as their own families have suffered greatly. Knowing that their experiences were not unique, they worked independently for two years to spread information about Lyme disease in Indiana before combining efforts. In March of 2014, they established Indiana Lyme Connect- and exclusively volunteer 501(c)3 tax-exempt nonprofit.